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SUMMARY:Cure GABA-A | What is Project FIND-OUT with Elizabeth Rountree
DESCRIPTION:The overall goal of Project FIND-OUT is to facilitate early and accurate genetic diagnosis of rare genetic neurodevelopmental disorders\n\n\nFor Families Project FIND-OUT \n \nThe overall goal of Project FIND-OUT is to facilitate early and accurate genetic diagnosis of rare genetic neurodevelopmental disorders in infants between the ages of 3-12 months in the United States. \nFamilies who participate will receive the following free services: \n\nMeet with a genetic counselor\nReport with your child’s genetic testing results\nConnect with a specialist\, who can help you understand next steps and potential treatment options\nParticipate in research\n\nBy participating in Project FIND-OUT\, you will contribute to an important research study on the value of genetic testing. We hope this study will lead to the development of guidelines for physicians and health insurance companies. Having guidelines may make it easier for other families to get genetic testing in the future and a genetic diagnosis in the future. Lastly\, getting children diagnosed earlier will speed up access to new treatment options
URL:https://curegabaa.org/event/cure-gaba-a-what-is-project-find-out-with-elizabeth-rountree/
ATTACH;FMTTYPE=image/jpeg:https://curegabaa.org/wp-content/uploads/2024/02/d1adc8e3e09df41f8bec0203f8dae9bc.jpg
ORGANIZER;CN="CURE GABA-A":MAILTO:info@curegabaa.org
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DTSTART;TZID=America/Los_Angeles:20240213T130000
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DTSTAMP:20260419T174020
CREATED:20240210T183002Z
LAST-MODIFIED:20240210T183002Z
UID:2404-1707829200-1707832800@curegabaa.org
SUMMARY:Cure GABA-A | What is Project FIND-OUT with Elizabeth Rountree
DESCRIPTION:The overall goal of Project FIND-OUT is to facilitate early and accurate genetic diagnosis of rare genetic neurodevelopmental disorders\n\n\nFor Families Project FIND-OUT \n \nThe overall goal of Project FIND-OUT is to facilitate early and accurate genetic diagnosis of rare genetic neurodevelopmental disorders in infants between the ages of 3-12 months in the United States. \nFamilies who participate will receive the following free services: \n\nMeet with a genetic counselor\nReport with your child’s genetic testing results\nConnect with a specialist\, who can help you understand next steps and potential treatment options\nParticipate in research\n\nBy participating in Project FIND-OUT\, you will contribute to an important research study on the value of genetic testing. We hope this study will lead to the development of guidelines for physicians and health insurance companies. Having guidelines may make it easier for other families to get genetic testing in the future and a genetic diagnosis in the future. Lastly\, getting children diagnosed earlier will speed up access to new treatment options
URL:https://curegabaa.org/event/cure-gaba-a-what-is-project-find-out-with-elizabeth-rountree-2/
ATTACH;FMTTYPE=image/jpeg:https://curegabaa.org/wp-content/uploads/2024/02/d1adc8e3e09df41f8bec0203f8dae9bc-1.jpg
ORGANIZER;CN="CURE GABA-A":MAILTO:info@curegabaa.org
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