BEGIN:VCALENDAR VERSION:2.0 PRODID:-//CURE GABA-A - ECPv6.16.3//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://curegabaa.org X-WR-CALDESC:Events for CURE GABA-A REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20240310T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20241103T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20250309T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20251102T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20260308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20261101T090000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20250926T130000 DTEND;TZID=America/Los_Angeles:20250926T143000 DTSTAMP:20260607T154923 CREATED:20250923T065822Z LAST-MODIFIED:20250926T071539Z UID:4354-1758891600-1758897000@curegabaa.org SUMMARY:CURE GABA-A | Grann Pharmaceuticals mRNA Protein Replacement for GABAARs DESCRIPTION:First glimpse at mRNA protein replacement for GABAAR disorders. Join CURE GABA-A + Grann Pharma live Q&A this Friday at 1PM PST.\n\n\nCURE GABA-A | Grann Pharmaceuticals: mRNA Protein Replacement for GABAAR Disorders \n \nDate & Time\n📅 Friday\, September 26th 2025🕐 1:00 PM PST | 4:00 PM EST \nLocation\nOnline Event (Zoom link provided upon registration) \nDescription\n🚨 STOP WHAT YOU’RE DOING 🚨 \nThis is the moment everything we’ve worked for comes down to. We started CURE GABA-A with one mission: to get pre clinical data for treatments relating to GABAAR disorders as quickly and safely as possible. And now\, we are finally at the beginning. \nGrann Pharmaceuticals has developed an mRNA-based protein replacement therapy for GABRA1 and GABRG2 variants. This therapy is already produced and ready for preclinical testing. With the right support\, we can bring it to the FDA and into clinical trials by the end of 2026. \nBut science alone isn’t enough. We need the community to band together now\, fundraising\, donating\, and spreading the word\, to make this therapy a reality for children and families. \nJoin us for a live Q&A with Tommy Temple\, CEO of Grann Pharmaceuticals\, as he explains: \n\nWhat mRNA protein replacement therapy is\nWhy it could be the first treatment for GABAAR disorders\nThe FDA pathway and clinical trial timeline\nHow YOU can make the difference to bring this to clinic\n\n💙 Together we can move from hope to treatment. \n \nAgenda\n\nWelcome from CURE GABA-A\nPresentation by Tommy Temple (CEO\, Grann Pharmaceuticals)\nLive Q&A session\nCall to Action: How to Fundraise and Donate\n\n \nTickets\n🎟️ Free – Registration required.Donations encouraged: https://www.facebook.com/donate/4300256346872932/ \nor GoFundMe: https://www.gofundme.com/f/lifesaving-gene-therapy-drug \n \nCall to Action\n✨ Every donation moves us closer to the first-ever GABAAR clinical trial.✨ Every fundraiser brings hope to families waiting for answers. \n👉 Register now\, join the movement\, and help us make history. URL:https://curegabaa.org/event/cure-gaba-a-grann-pharmaceuticals-mrna-protein-replacement-for-gabaars/ LOCATION:FL ATTACH;FMTTYPE=image/jpeg:https://curegabaa.org/wp-content/uploads/2025/09/eb129fe2f5040dd1250b287baff34beb.jpg ORGANIZER;CN="CURE GABA-A":MAILTO:info@curegabaa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261105 DTEND;VALUE=DATE:20261108 DTSTAMP:20260607T154923 CREATED:20251210T173503Z LAST-MODIFIED:20260527T185024Z UID:4631-1793836800-1794095999@curegabaa.org SUMMARY:2026 CURE GABA-A Family & Scientific Conference DESCRIPTION:2026\nCURE GABA-A Family & Scientific \nConference\n \n \n \n \n \n November 5-7th • 8:00 am \nHYATT REGENCY ORLANDO\, FLORIDA \n \n Register to Attend\n \n Sponsor the Conference\n \n \n \n \n \n Two days of scientific presentations\, family programming\, GABA-A Receptor research updates\, and global collaboration. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n 2023 Roundtable\n \n \n \n \n \n \n \n 2024 Conference\n \n \n \n \n \n \n \n 2025 European Conference\n \n \n \n \n \n \n \n 2025 Conference\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Countdown\n \n \n Day(s) \n \n : \n \n \n Hour(s) \n \n : \n \n \n Minute(s) \n \n : \n \n \n Second(s) \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n   \nWhat\, When and Where\n\n\n\n\n\n\n\n\n\n\n\nWhat:\n2026 CURE GABA-A Family & Scientific Conference \n \nWhen:\n\n\n\n\nDisney Day | November 5th \nFamily Meeting | November 6th \nScientific Meeting | November 7th \nWhere:\nHyatt Regency Orlando9801 International DriveOrlando\, FL 32819 \n\n\n\n\n\n\n\n\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Featured Talks & Speakers\n \n Full Schedule Available soon\n \n \n \n \n \n \n \n \n \n \n \n \nWhat to Expect\nDiscover the leading voices shaping the future of GABAAR research. \nOur 2026 conference features presentations from global experts in GABAAR science\, neuroscience\, clinical care\, gene therapy\, and translational research. \nAttendees will hear the latest updates on GABAAR science\, therapeutic development\, natural history studies\, iPSC research\, animal models\, and real-world clinical insights. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n SCIENTIFIC PROGRAM\n \n \n \n \n \n \n \n FAMILY PROGRAM\n \n \n \n \n \n \n \n BIO SAMPLE COLLECTION\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n 2026 Conference Highlights\n\n\n\nGABA-A receptor biology and disease mechanisms\nNatural history studies and the importance of clinical trial readiness\nPatient registries and data collection\nBiomarkers and clinical outcome measures\nPreclinical models and translational research\nGene therapy and therapeutic development\nClinical trial readiness and future therapeutic pathways\nGlobal collaboration across the GABA-A community\n\n\n\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Venue\n Our venue will be the Hyatt Regency Orlando Conference Center \n\n\nHotel Room Block (Across the street)\nRosen Centre Hotel \nAddress: 9840 International Drive\, Orlando\, Florida 32819 \nOfficial program dates: Wednesday\, November 4\, 2026 through Sunday\, November 8\, 2026 \nConference dates: November 6–7\, 2026 \nDisneyland/Disney family day: November 5\, 2026\, with more details coming soon \nSuggested arrival: November 4 for families attending the Disney day \nSuggested checkout: November 7 or November 8\, depending on travel plans \nGroup name: CURE GABA-A \nRoom block name: CURE GABA-A – Room Block \nTotal rooms blocked: 160 room nights \nRoom block pattern:    * November 4: 20 rooms    * November 5: 50 rooms    * November 6: 50 rooms    * November 7: 40 rooms \nGroup room rate: $169 per night for single/double occupancy \nAdditional person fee: $20 per person \nTaxes/fees: Room rate is exclusive of taxes and fees\, currently including 12.5% state/local taxes and a 1% OCCCD fund \nChildren: No charge for children ages 17 and under when using existing bedding \nBooking deadline: Monday\, October 5\, 2026 at 5:00 PM EST \nAfter the deadline: Reservations will be accepted based on availability and may be at the higher of the group rate or the hotel’s available rate at that time \nBooking by phone: Guests may call 1-800-204-7234 or 407-996-9842 and ask for the CURE GABA-A group rate \nOnline booking link: Coming soon \nDeposit/payment: Individual guests are responsible for their own room\, tax\, and incidental charges \nReservation guarantee: Rooms must be secured with a credit card\, debit card\, cash\, check\, or money order \nCancellation policy: Individual guestroom cancellations must be made at least 5 days before arrival to avoid forfeiting one night’s room and tax \nShortened stay fee: Changes to departure date after check-in may result in a one-time $75 administrative fee\, unless due to a documented family emergency \nCheck-in: After 3:00 PMCheck-out: 11:00 AMWi-Fi: Complimentary basic Wi-Fi is included in guestrooms and public areas\, excluding meeting/convention areasResort fee: No resort feeParking: Discounted overnight self-parking rate of $15 per night for attendees during program datesAccessible/ADA rooms: Guests needing accessible rooms or auxiliary aids should request them directly with the hotel when booking \nImportant hotel note: Guests should confirm they are booking at Rosen Centre Hotel on International Drive\, as there are multiple Rosen hotels in the area \nSource: Rosen Centre Hotel room block agreement for CURE GABA-A. \nTravel Planning\nTo help families manage costs\, we encourage booking airfare as early as July. Flights to Orlando tend to increase in price as summer approaches\, so early planning can make a big difference. \n \n \n \n \n \n On-Site Bio sample Collection\n \n\n\n\n\nAt the 2026 CURE GABA-A Conference\, families will have the opportunity to take part in on-site bio sample collection through COMBINEDBrain\, our national research and bio collection partner. \n \nWho Can Participate\nFamilies of individuals with confirmed or suspected GABAAR variants are welcome to take part. Samples may include saliva\, blood\, or other non-invasive collections depending on the research protocol.\n \nWhy It Matters\nEvery sample helps researchers better understand GABAAR variants and how they affect development\, seizures\, expression\, and brain function. These samples accelerate the development of new treatments\, including mRNA therapy\, protein replacement\, drug screening\, and biomarker discovery.\nYour contribution moves research forward in a tangible\, measurable way.\n \nWhat COMBINEDBrain Does\nCOMBINEDBrain is a leading research consortium focused on severe neurodevelopmental disorders. They work with top scientists and hospitals to process\, store\, and analyze biosamples so data can be used responsibly and effectively across multiple research programs. Their work ensures that every sample contributes to real progress.\n \nHow to Sign Up\nWe will release a sign-up link closer to the event. Families will be able to select a time slot that works best for their schedule.\nSpaces may be limited\, so we encourage early registration once sign-ups open.\n\n\n\n\n\n\n \n \n Bio Collection Registry\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n For Families\n Learn the latest science in a supportive environment \nConnect with families from around the world \nAccess resources and variant-specific insights \nParticipate in biosample programs that accelerate research \nMeet the scientists who are actively working on GABAAR therapeutics \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Researchers & Clinicians\n Present your work to a global\, engaged audience \nAccess a rare and concentrated dataset across GABA-A receptor variants \nEngage directly with families and community leaders \nCollaborate with global labs \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n For Sponsors\n Align with high-impact rare disease research \nGain visibility among families\, scientists\, and clinicians \nSupport the advancement of GABAAR  therapeutics \nReinforce your corporate commitment to neurological innovation \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Our Sponsors\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Thanking our previous years sponsors\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Register Now!\n \n Ticket Info\n \n \n \n \n \n \n \n \n \n \n \n \n Contact Us\n \n \n \n \n \n \n \n \n \n Name\n \n \n \n \n \n \n Email\n \n \n \n \n \n \n Message\n \n \n \n \n \n Submit\n \n \n \n \n \n \n \n \n \n \n Have questions? We’re here to help.Email: info@curegabaa.org  \n30765 Pacific Coast Hwy Suite 366 Malibu\, CA 90265 United States \nEIN: 93-1989277 URL:https://curegabaa.org/event/2026conference/ LOCATION:Hyatt Regency Orlando\, Hyatt Regency Orlando 9801 International Drive\, Orlando\, FL\, 32819\, United States CATEGORIES:CURE GABA-A Conferences ORGANIZER;CN="CURE GABA-A":MAILTO:info@curegabaa.org END:VEVENT END:VCALENDAR